“I’ll start out by saying I was not always comfortable or accepting of my disorder, Ehlers-Dalos syndrome.(a connective tissue disorder that inhibits the body’s ability to produce collagen) Growing up, my family did not think there was anything specifically wrong with me, especially with it being branded as an invisible illness. I was diagnosed around the age of 10 but had noticed my skin as early as the age of 7.
My sagging skin was my biggest insecurity, amongst other side effects. I would later learn this was due to the rarity of my type. As I got older, my discrepancies started to show more and more. The majority of people who had noticed assumed I had gone through some type of weight flux, which resulted in my “stretchy skin.”
When I started my journey I knew I was struggling and knew I needed someone to help me break through. Yasmin -my cousin- was with me. I stated how unhappy I was, how I wanted to try to love myself and learn about my disorder – I just didn’t know where to start. Her statement to me changed my attitude. She responded, “This is what I have been waiting to hear for a very long time. Your disorder is beautiful. It’s what makes you, you. Only you can change your mindset and love yourself.”
-evaluation, I realized my insecurities caused me to lack any confidence, which had an impact on all of my social and personal relationships. I observed that hating certain parts of my body triggered my unhealthy mindset. This outlook transferred into a majority of my friendships/relationships, which then made them incapable of reaching their full potential
I promised myself from then on I was going to be true to myself, love my body, love my disorder and most importantly, love myself
You’re different. People don’t know how to react or how to accept someone who doesn’t follow the crowd… They are not used to someone who doesn’t try to fit in — So instead of bolstering your uniqueness, they’ll try and make you feel like you’re weird or damaged. I’m here to offer some well earned advice